Monday, April 02, 2012

Some exciting news!

Some of you may know that my son Jacob, who is 11 has Haemophilia, a life-threatening blood disorder. In order for his blood to clot properly he requires injections of Factor, 2-3 times per week. In his infancy, this always necessitated a trip to the Children's Hospital, but in more recent years, my hubby has learnt to give Jacob his needles so that we can treat him at home. Well, I'm very proud to say that while Dave was overseas, Jacob had a couple of lessons at the Children's Hospital, and yesterday he did his own needle at home, completely unassisted. It was a nerve-wracking but also very proud moment for Dave and I, and when Jacob inserted the butterfly needle into his own vein and hit it first go, seeing his big excited grin as the blood flowed down the tube brought tears to my eyes. When he was diagnosed at 4 months of age, I had no idea of the bumpy path ahead. I've always had to suppress my urge to wrap him in cotton wool, and seeing him now on this path to independence is both liberating and scary (I'm sure all you parents out there know what I mean!).

And in other exciting news, there are 2 tickets to Broome with my name on them :o) Thank you so much to all of you (you know who you are) who had more faith in me than I had in myself.

29 comments:

  1. OMG...how exciting....I was convinced you felt you wouldn't make it - and so glad you did....

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  2. Oh Marelle what a great moment for you. It's such a big milestone. As a mother of a child with a chronic condition it means so much. Good stuff Jacob keep up the good work. As for the trip, we always knew you could do it. Well deserved. Enjoy and have a great time.

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  3. Well done to Jacob, it must be a hard thing to do! Congratulations to you too Marelle! I hope you thoroughly enjoy your trip to Broome :D

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  4. Awesome stuff Jacob - what a very big thing to have accomplished! And Marelle, I am so so rapt for you that you made it to the trip - I have missed the trip by the tiniest margin twice in the past, so I have been watching with bated breath all month to see if you would make it and YOU DID IT! Awesome!

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  5. Yay to Jacob for the needle - that is so awesome!
    And a TRIPLE YAYAYAY on the trip. Well done!

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  6. It is amazing what children can do isn't it? What an amazing Milestone.

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  7. Fantastic news all round.
    We haven't met,(my daughter is SJ Klass) but I am very happy for you and your family. x

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  8. Congratulations to your brave son - you must be so proud of him.....and congratulations to you on achieving the Incentive Trip!! So excited for you!! :)

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  9. Three cheers to Jacob, what an accomplishment! And three cheers to you, Marelle!!! Wooooohooooo!

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  10. That is fantastic Jacob well done!And yay for you too Marelle! Can't wait to share another amazing trip with you and Dave :)xx

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  11. Jacob, how brave you are, I'm not affraid of needles, but I don't think I could ever give myself a needle. Well done. And Marelle, I'm just so happy for you, you really deserve it. Vic

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  12. I had no idea ..ex paediatric Haematology Scientist here ..well done Jacob! And woohoo on the IT ..really happy to hear that you made it..good on you!

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  13. I had no idea ..ex paediatric Haematology Scientist here ..well done Jacob! And woohoo on the IT ..really happy to hear that you made it..good on you!

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  14. Kathryn Brennan2/4/12 7:54 pm

    Wow, wow, wow. What exciting/proud/wonderful news on both counts. Enjoy Broome and let us know how it goes!!

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  15. Wow - you Taylor's are on a roll!
    Jacob should be so proud of himself - not too many adults could do that, and smile at the end of it!!
    Great to know that you will be enjoying yourselves in Broome - you deserve it many times over.

    WendyB

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  16. What fantastic news. For everyone in the family. We have only "just met" you and I, but I am already impressed by the incredible resiliency in your family. So glad that things are working out. For everyone!
    Have a wonderful week and God Bless, ~Cynthia <><

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  17. Christine B2/4/12 10:44 pm

    Jacob, you are an absolute winner! And your special Mum too! Well done both of you. Love, Chris B xoxo

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  18. Jacob is a champion (I'm a midwife and am very impressed that he can use a butterfly!). Congrats on Broome, was going to post an order til I saw your post about the $2300 to go. Should've had more faith!

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  19. Well done Jacob! Congratulations Marelle on making the incentive trip. You really deserve it.

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  20. Good work Jacob!!! and congratulations Marelle on making the trip! Have a blast!!!!!

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  21. What a great milestone for Jacob and your family
    You are such an inspiration to me and so many others. So happy to see that you made the incentive trip this year!!!! Well done

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  22. congrats Marelle and to Jacob also. Wonderful news.

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  23. Well done Marelle - firstly on being brave enough to help Jacob learn to administer his own needles (must have been very scary - great job, Jacob!) and for earning the Incentive Trip - awesome!

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  24. What a great post to read! Well done Jacob - you are braver than me. I always have to look away when I have to have a needle.

    Marelle - I am SO happy for you. I hope you really enjoy this trip - you deserve it. Hopefully one day I'll get to meet you :)

    Thanks again for sharing your awesome talent with us.

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  25. Excellent Jacob!! I don't like needles & look away when I have to.have them. So you are extra special!!! Marelle I knew you would make the trip!!! So pleased for you!! Glad those negative "vibes" didn't stop you !!!! Have heaps of fun!!!! Michelle s

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  26. Michelle A5/4/12 10:09 am

    Oh Marelle!!!
    Broome!! I'm SOOO excited for you! WAY TO BOUNCE BACK! I'm delighted that you pulled it through despite taking your contest off air. And what an uplifting post that you opened it by talking about your son. Just excitement all around!
    Michelle

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  27. Cogratulations Marelle, you so deserve to go on your trip. What a great moment for Jacob, and the whole family for that matter. He is really on his way now.....you should be proud....Carolin x

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  28. That's great news on both counts. Congratulations Marelle.

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  29. Congratulations!! I don't know how I missed this, (probably had my head buried in a textbook), but this news has just made my day! I'll be especially proud to give you a well-deserved 'you made it' hug at Convention. And Jacob, that's a pretty clever accomplishment!! Well done you, I can see a career as an expert venepuncturist ahead, and they are a very special and rare breed, just like you! :) xx michelle

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